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Volume 13, Issue 2 , Pages 132-140 , June 2006

“My Son Is Still Walking”: Stages of Receptivity to Discussions of Advance Care Planning Among Parents of Sons With Duchenne Muscular Dystrophy

Preliminary findings were presented at the American Society of Bioethics & Humanities 2004 Annual Meeting, October 28-31, Philadelphia, PA.

Lori Hamby Erby, PhD, ScM
- Department of Health, Behavior and Society, Bloomberg School of Public Health, Johns Hopkins University, Baltimore, MD.
- Address reprint requests to Lori H. Erby, PhD, Johns Hopkins Bloomberg School of Public Health, 624 N Broadway, Room 750, Baltimore, MD 21205.
Cynda Rushton, DNSc, RN
- Phoebe Berman Bioethics Institute, Johns Hopkins University, Baltimore, MD.
- School of Nursing, Johns Hopkins University, Baltimore, MD.
- Department of Pediatrics, School of Medicine, Johns Hopkins University, Baltimore, MD.
Gail Geller, ScD, MHS
- Department of Health, Behavior and Society, Bloomberg School of Public Health, Johns Hopkins University, Baltimore, MD.
- Phoebe Berman Bioethics Institute, Johns Hopkins University, Baltimore, MD.
- Department of Pediatrics, School of Medicine, Johns Hopkins University, Baltimore, MD.
- Department of Medicine, School of Medicine, Johns Hopkins University, Baltimore, MD.